Women’s Inclusion

Women’s Inclusion into the Definition of AIDS

In 1993, after much activism—jump-started by black women living with HIV, in jail—the U.S. Center for Disease Control updated the definition of AIDS to include illnesses experienced by people who do drugs, people of color, women, and people who are all three. Before then, many people with HIV were unable to get an AIDS diagnosis, robbing them of treatment and resources. Women with HIV were struggling with housing, malnutrition, Pelvic Inflammatory Disease, and having their children taken away.

Katrina Haslip was a foundational activist in the definition’s change. As a jailhouse lawyer at Bedford Hills, she organized with others (on the inside and out), including lawyer Terry McGovern. Together, they launched a class action lawsuit against the Social Security Administration, which was inappropriately using the faulty CDC definition to deny resources to people living with HIV without an AIDS diagnosis.

Watch: Katrina Haslip on Video

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AIDS Archive Activism